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Dysautonomia Dietitian's avatar

Looking forward to our conversation on Substack live!

Also, Ramadan Kareem!

Beth Ann Kepple's avatar

Thank you for this plethora of information - haven’t indulged in it yet but will this weekend (break between doing taxes groan). I’m not sure if this is the proper way to ask you your opinion on a Covid treatment or not so please educate me. My pain management doctor is suggesting NAD+ treatments for fatigue & brain fog. I’ve had Covid since March of 2020 so 6 years of,it. believe it or not, major symptoms daily are Trigeminal neuralgia, occipital neuralgia, & PEM, which caused me to retire early from a job i loved (flight attendant) although I was 65 when I got Covid & there’s no age limit on that job. I have chronic pain & activities are half of what i used to do most days unless i want to pay by spending a few days in bed. Approaching 71, i realize how lucky I am that I got it late in life. One of my best friends got it a week before i did, was much sicker, and after 2 years ended his life at the age of 38. The reason in the note he left was “i just can’t live with the pain anymore”. We shared a birthday. As many are, i am sick & tired of being sick & tired, have tried a million things that didn’t work or maybe just a little temporarily. Whenever something new happens - last July i was diagnosed with bradycardia & had to get a pacemaker - my friends all say “you blame everything on Long Covid” & they’re right, I do. Maybe that’s wrong but i type in “Bradycardia long covid” & up pops articles on people in their 30’s & 40’s with LC developing it.

Sorry to share to much info but at this point, no, i won’t just recklessly try anything. My pain doc is conservation in his treatments but also willing to think outside the box & an epidural using PRP has stopped my occipital neuralgia for over a year. So if you’re comfortable sharing an opinion on using NAD+ for fatigue & brain fog from LC, I’d love to hear it. He read about trials are in the works & knows more about it than i do at this point. If not comfortable sharing, thats fine & thanx so much for all you do & have done. You are a blessing to us.

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